Sometimes, for a few days, it's easy to forget how sick I am. But I found out I have cancer two and a half years ago, and I've been under some sort of treatment—chemotherapy, radiation, surgery, or recovering from those things—the whole time. Tomorrow I'll hear the results of my latest CT scan, good or bad. That will help determine what comes next.
Last night I hardly slept. I was in the bathroom at least once an hour, sometimes several times, right through till 6:00 a.m., and luckily my wife Air was able to get up and make sure the kids got off to school, which is usually my job. Side effects of cediranib, my current medication, kept me up. They're hard to predict, so when I felt them coming on last night I had no idea whether they might clear out my intestines in an hour, or whether it would take all night. All night it was.
I will also note, without further comment, that the bag of popcorn I ate when I took the kids to the movies on Saturday was a very bad idea.
Now I'm awake, taking some Advil and hoping to recover enough to get out of the house sometime today. Before she went out to her appointments this morning, my wife put a second coat of varnish on our stairs. They look good, and there's a fan helping them to dry. We need milk and butter, the baby chickadees are growing in our birdhouse, I love my family. Life continues.
Labels: cancer, ctscan, family, pain, sleep
People are supposed to be either introverted or extroverted, but I've never been sure where I fit. Perhaps I'm an ambivert (yuck, an ugly word):
So I found Sophia Dembling's "Confessions of an Introverted Traveler" (via Kottke) fascinating. I like her thesis:
Though I don’t need to talk to a lot of people, I love watching them. [...] I travel for the travel.
I suspect I may be primarily an introvert—like Dembling, I find the North American preference for extroversion a bit oppressive. That doesn't mean I prefer solitude in all circumstances, but that social interactions take energy for me, and I need time alone to recharge. I like activities with friends, and especially with my wife and children, but given time to myself, I'm unlikely to want to meet anyone for lunch or a night out. Instead, I might go out by myself, and it doesn't feel at all lonely.
I recall last year's Gnomedex conference in Seattle, an intense three-day geekfest of ideas and discussion together with hundreds of my peers in a Seattle meeting room. The hotel my wife and I chose was a good 20-minute walk away up the waterfront escarpment and through downtown. Despite the physical difficulty of making the trek with my rolling bag of computer and camera gear while suffering cancer-treatment side effects (as I still do), I enjoyed the trip each day. That's because I could be alone and enjoy people-watching as I trundled through the glass tower canyons and Pike Place Market, and either charge up on the way to the meeting, or get my energy back on the way to the hotel.
Right now is a good example too. I've had a rough couple of nights of side effects this week, and my wife is out for the afternoon, but now that I'm finally feeling good, rather than setting up a lunch meeting, or saying hi to my parents (who live next door), I'll probably just go for a solitary walk. That's just what I need.
Labels: cancer, chemotherapy, family, friends, psychology, travel
Okay, maybe we did pay a price for our fabulous little trip. Not because of all the heavy food, but from the intensity of the activity. Aside from our outings, we also did a bit of shopping and quite a lot of swimming in the hotel pool. So, after all that, once we got home, my cancer medication side effects kicked in and I was in the bathroom till 2 a.m.
Then, this morning, we were all so wiped out we could hardly struggle out of bed. The kids were tired enough that I kept them home from school so they're in better shape for Thursday (or maybe after lunch today), and I've been resting. Alas, my wife had to make her way to a couple of medical and dental appointments, so she dragged herself out of the house.
Anyway, I think the weekend was enough of an educational experience that it's okay for the girls to miss a bit of school. The Woodland Park Zoo and the Boeing factory are a killer field trip, right?
Labels: cancer, chemotherapy, family, school, seattle, travel
We've just returned from a whirlwind trip. My daughters had an extra day off school, a professional day following the Victoria Day long weekend, so we made quick plans to stay in a hotel in the Seattle suburb of Lynnwood, Washington, a couple of hours' drive south of here. But to thread the needle of long weekend border traffic, we crossed our station wagon into the USA on Sunday and returned Tuesday.
I'm not quite sure how we fit all we did into the 54 hours we were away, but it included a number of family firsts. My older daughter is a big fan of shrimp, and has been enticed by endless ads for the Red Lobster chain of restaurants. We have none in Vancouver, so Lynnwood offered the closest location, and despite lingering memories of a 1995 food poisoning incident at a California location on our honeymoon, my wife and I agreed to go. We all enjoyed our meals there Sunday night, without later illness.
That was the least of the newness, though. My wife Air and I have traveled to Greater Seattle many times over the years, separately during our childhoods and together since we started dating, both with our kids and without, for fun and on business, as a destination and on the way elsewhere. Yet somehow neither of us had ever visited the wonderful Woodland Park Zoo, or Lynnwood's famous Olympus Spa, or Boeing's widebody jet factory in Everett. This trip we covered them all: the kids and I hit the zoo, Air visited the spa, and all four of us took the Boeing tour today on the way home.
The zoo impressed me, especially the habitats for the elephants, gorillas, and orangutans, but while it was a much shorter activity, the Boeing tour was something else. If you live in this part of the world (Vancouver, Seattle, Portland, and environs), and you're a geek who likes any sort of complicated technology, or air travel, or simply huge-ass stuff, you must go, especially considering there's nowhere else in the world you can easily see something similar. The Airbus factory in France requires pre-registration months in advance, with all sorts of forms filled out and approvals and so forth. We just drove up to Everett, paid a few bucks each, and half an hour later were on our way in.
Unfortunately, you're prohibited from taking cameras, electronics, food, or even any sort of bag or purse beyond the Future of Flight exhibit hall where the tour begins, so I have no photos of the assembly plant itself. Trust me, though, it is an extraordinary place. A tour bus drove our group the short distance to the structure, which is the most voluminous building in the world. (Our guide told us all of Disneyland would fit inside, with room for parking. Since the plant is over 3,000 feet long, I figured out that the Burj Dubai tower, the world's tallest building, could also lay down comfortably on the factory's floor space.)
From two separate third-level vantage points inside, accessed by walking down immensely long underground tunnels, then taking freight elevators up into the factory's rafters, we saw more than a dozen of the world's largest aircraft in various stages of assembly. They included several units of the venerable and massive Boeing 747 (its still-revolutionary design is older than me); a couple of nearly complete 767s; a string of 777s in their slow-crawling, constantly-moving U-shaped assembly line; and finally a trio of 787s—a design so new that they are built mostly of composite materials instead of metal, and not even one has yet entered commercial service.
The end of the tour took us outside again on the bus, past the painting hangars and numerous planes waiting for pickup by airlines, as well as one of Boeing's three Dreamlifter cargo monsters, created by cutting off most of the upper half of an old 747 and installing a huge new fuselage top, purely to bring in assembled parts for the new 787s, to be fitted together inside the factory.
While that facility is one structure, which has been expanded over time, each type of plane built there demonstrates how aircraft construction, and industrial assembly lines in general, have changed in the past 40 years. 747s are still built at numerous discrete stations, as they were when the Everett plant first opened in the 1960s. As I mentioned, 777s come together in a single, steady-moving U-shaped line, apparently inspired by the envied Toyota Production System, each plane edging forward steadily at 1.6 inches per hour.
Finally, the new 787 comes together in a short, simple line across the width of the building. That's because (as with competitor Airbus's planes) sections of each aircraft arrive nearly complete from other factories around the world on the Dreamlifter cargo carriers, and are put together in Everett, rather than built from scratch.
I came away newly inspired by the modern miracle of science and engineering that is a jet airliner. These machines are what enable us to complain about waiting around in airports for a few hours, and about substandard in-flight food as we fly between continents—while forgetting that not many lifetimes ago, and for all of human history beforehand, similar voyages might take have taken us years instead of hours, facing danger and starvation and death, if they were possible at all.
Then, on the way home, we bought a bunch of squeeze cheese, also unavailable here in Canada.
Labels: airport, americas, animals, family, geekery, science, seattle, transportation, travel
Last week, for Mother's Day, I had some enlargements made to frame and put on our walls. The London Drugs photo lab did a great job—certainly better than anything I could have accomplished on a home printer, and on proper Fuji photo paper too. Most are family shots, though I did choose one of my more arty images to turn into a 12x18" print. Here's what we picked:
Some of those photos are digital, some film, some colour, some black-and-white. I don't think I would have so many favourite images to pick from, and be able to have them printed and framed so inexpensively, in any photographic age except this one.
Yet, in another way, they could have been taken almost anytime. Closeups of young faces, kids laughing on a snowy slope or a sandy beach, a fishing boat and distant volcano—all could have been 20 or 40 or 60 or 80 years ago, and much the same. I guess that's one reason I like them.
Labels: family, home, photography
What's wrong with me? My wife goes out of town on a fun vacation for a few days, and I get all cranky and ranty on this blog. (Fortunately, only here, not with the kids or anyone else.) First it's asbestos, then knowledge vs. understanding, then child safety.
Today? Well, via Kottke, it's something big: the Jonas Brothers. Even my daughters, in the prime Jonas target demographic at ages 9 and 11, hate them. Because, as musically inclined children, my kids told me without any prompting that the Jonases can't sing or write a decent tune. But it's worse than that:
Teenage life is sexual emergence and rock music often times is sex. The problem is that The Jonas Brothers conceal sexuality under the guise of sex-free fun.
My daughters aren't yet teens, but they can already sense something fundamentally false about the Jonas Brothers' "rock and roll purity." My girls do enjoy Miley Cyrus, who may be part of the same Disney machine, but at least she can sing (despite all the Auto-Tune processing on her recordings), she's shown hints of creating an interesting career for herself in the future, and her sitcom is pretty funny. Yet they've also noticed the seemingly endless succession of new "stars" coming out of Disney's coordinated maw at the moment.
They still prefer The Beatles to any of the others, anyway. Now there's a boy band we can believe in, and sexy too.
Lenore Skenazy's Free-Range Kids sounds like a fascinating book (she has an accompanying blog too). Her argument, essentially, is that the crime rate today is equal to what it was back in 1970, and kids should go outside alone, as they always did in human history. "If you try to prevent every possible danger or difficulty in your child's everyday life," she says, "that child never gets a chance to grow up."
Our daughters have been walking to school by themselves for awhile now, but they're not wandering the neighbourhood all day as I used to 30 years ago. They probably should, but I don't think the idea has even occurred to them. That despite the likelihood that today's environment has probably made our kids safer than any kids have ever been, particularly when you take disease prevention into account.
In Vancouver, though, we can blame this new parental paranoia on Clifford Olson, and it has spread across much of the Western world. I think Skenazy's instinct to let her nine-year-old son explore New York City alone last April—with a transit pass and some quarters for a pay phone if he needed them (he didn't)—is a good one. He wanted to try, and he was ready.
"We become so bent out of shape over something as simple as letting your children out of sight on the playground that it starts seeming on par with letting them play on the railroad tracks at night. In the rain. In dark non-reflective coats," writes Skenazy. "The problem with this everything-is-dangerous outlook is that over-protectiveness is a danger in and of itself. A child who thinks he can't do anything on his own eventually can't."
Our experience bears this out, in an odd way. The only injuries my daughters have ever suffered that required hospital visits happened, (a) stepping out of our bathtub, (b) bouncing on a bed, (c) being rear-ended in a crash in our car, and (d) scraping a chin at a swimming pool. In all cases, we were right there, and we didn't make them any safer. There are dangers in all of our lives, but they're not generally the ones we fear.
Labels: controversy, family, linkbait, news, newyork, probability
It's a cliché that without health, we have nothing, but clichés exist for a reason. Here are my kids when they're healthy:
This week has been a bit of a worry because our younger daughter (top, in yellow) has been home sick for a couple of days with a vague malady (nothing like swine flu, fortunately), while yesterday, our older daughter (bottom, in fuchsia) tripped during gym class and made a total face-plant on the school gymnasium floor, leading to a doctor's visit to rule out a concussion.
(Coincidentally, two other kids also hurt themselves during the same gym class, even though they weren't doing any oddball activities—one gashed his head, the other just banged his leg and didn't have to leave school.)
Of course, I'm often laid up with side effects from my cancer medication, and this week even my wife had to ice an ankle she twisted a little while ago. So we've seen an inkling of what it could be like if we were all out of commission. I'm glad that's not the regular state, at least for the other three members of my family.
Labels: cancer, family, pain, school
My wife, kids, and I have spent quite a bit of time in Cannon Beach, Oregon, where we took our summer vacations several years in a row. We like the place: it's in the United States, another country, yet it's part of the same sort of coastal ecosystem as we have here in British Columbia. So it's familiar, yet foreign, and one of my favourite places.
Today my parents, who are returning from a road trip to San Diego, have happened into staying a night in Cannon Beach too. They phoned me tonight as they had a light dinner and wine on the patio of their motel, watching the sunset. Today is also their 44th anniversary. They like the place too.
Incidentally, after they checked in, my mother realized that, decades ago, she had stayed at the same motel with her longtime friend Erlyne.
Labels: americas, anniversary, cannonbeach, family, holiday, travel
I don't write as much about my cancer here as I did a couple of years ago. That doesn't mean it's gone, or going away—I still have nine malignant metastatic tumours in my lungs, but my treatment has turned into a routine, something of a drudgery. I take a small but nasty pill every day, and have side effects that keep in me in the bathroom for an hour or more every night or two. Every two months I go to the B.C. Cancer Agency and lie down in a big doughnut-shaped machine for a CT scan, and then a few days later I meet an oncologist to get the results.
And today, for maybe the first time ever, the news is relatively positive. I usually walk into the clinic expecting bad news, such as that the tumours would have grown substantially. If that had been the case, I planned to stop the current drug and take a break, then try something else in a couple of months. Yet there aren't a lot of something elses anymore, so that would have been a bummer. Still, it's what I expected, since it has been the pattern. I had asked my wife to come with me, expecting I'd need her support.
But instead, today the doctor told us that there has been no measurable change in my lung tumours. No, they haven't shrunk, but they are no bigger either.
Apparently there is one lymph node they had noticed before (though I hadn't heard about it) which has grown a bit, but overall he called it called it "no change," i.e. the cancer has been stable over the past two months. That means the cediranib pills are probably doing something, at least keeping the tumours at bay, and while the side effects aren't fun, they're manageable. Otherwise, I feel pretty good.
So, more of the same treatment for now. Pills, and side effects, but a livable life. And we'll see how things are in two months. I'm encouraged: this is the first time that the lung metastases haven't grown significantly between scans. I can plan for the summer and maybe ride my bike some, and we can do our thing here at home. That's good enough for me today, and I have some spring in my step this afternoon.
Plus, it looks like I may see the Olympics come to town after all.
Labels: cancer, chemotherapy, family, fear
Our older daughter is at a birthday party this evening, so we decided to take her younger sister down to Rev's for Cosmic Bowling.
Little L, my wife Air, and I are all... let's say novice bowlers. In fact, I realized once I got there that I've never in my life played ten-pin bowling, only five-pin with the much smaller balls. We asked to have the gutter bumpers pulled up to get at least a decent chance at a tolerable score.
We had tons of fun, though, as well as dinner at our table at the lane. (They serve booze too!) I think we'll go back.
Labels: birthday, family, sports
I inherited my Oma's strong teeth: when she died at age 91, she still had most of her natural teeth, despite having lived through two world wars, the Berlin Blockade, and a career as a restauranteur. While I had lots of orthodontics when I was a kid, and had to have all four widsom teeth removed in 1990, I have never had even a single cavity.
Until now. When I went to see my dentist this afternoon for a routine cleaning, a bit of sensitivity and an X-ray showed a tiny amount of decay on the front surface of the last molar on the top left side of my mouth. I'll set up an appointment to have a filling next week.
Since my teeth have put up with almost 40 years of abuse so far, I can't really complain. Especially considering how minor a cavity is compared to the other shit I'm dealing with these days. A few years ago I would have been pretty disappointed by tooth decay; now it's almost laughable.
In fact, there's a good chance the only reason I have this cavity is because the chemotherapy and other cancer treatments I've had over the past couple of years are pretty hard on my immune system and the rest of my body, teeth included. My dentist said my gums are actually in surprisingly good shape, considering. My Oma-teeth are still holding in pretty strong.
Not only that, but after all the surgery and stuff I've experienced recently, and all the heavy-duty painkillers and other drugs I've had to take, a bit of dental work is about as threatening as a mosquito bite. I'll drop in for 45 minutes, have my jaw frozen, listen to my iPod, and head home. From my current perspective, it's a piece of cake.
Labels: cancer, chemotherapy, family, fear, pain
Men often obsess about our gadgets—computers, cameras, cars, fishing gear, barbecues, TVs, stereos, whatever. But too often, we get wrapped up in the stats and numbers, and forget about the feel of what we use. Not that it's unimportant, but frequently when we're researching a new purchase, we'll ignore it in favour of the specs, and only learn about the subjective experience of using the device later. Sometimes to our detriment.
What brought this to mind was a blog post my younger daughter L, who is nine, made a couple of days ago. A few months ago my wife replaced her old laptop, so our daughter gets to use it now. (Her sister has a different desktop computer.) So L wrote:
This laptop is very special to me. I love the way the keyboard feels when I type. The way the lock opens when I ummm… open it.
I had to think, yeah. How the keyboard feels and how the lock opens are important. They're what make the laptop familiar, what define how she interacts with it, what makes it different from other technology around the house. Along with the programs she uses and the way she sets up her desktop and so on, they're what makes it hers. The speed of the processor, the size of hard drive, the amount of RAM—as long as there's enough of those things to do what she needs, they're irrelevant.
So next time you're looking at getting a new mobile phone, or a new TV, or a new camera, or whatever, take some time to figure out whether it feels right first. If you're not allowed to get it out of the package and try it, find one you can.
Labels: design, family, geekery
This is my kids' walk to school—and since I attended the same school in the '70s, it's also the same walk I took each day 30 years ago:
Compiled from 47 photos taken with my Nikon D50 every 15 to 20 steps on the way, and made with iMovie '09. Music is my tune "Camp Walk," from 2006.
Labels: family, memories, movie, nikon, penmachinepodcast, school
Labels: addiction, animals, animation, family, food, geekery, linksofinterest, science, security, time
I still have some more photos to upload, but early this evening we got back home after seven and a half hours and nearly 300 km by car and ferry returning from Tofino and Parksville. It was a great trip, one that will leave memories. As a nice capper, we managed to meet up with my friend Simon on the ferry in Nanaimo and, once we crossed the water, gave him a ride into West Vancouver to visit his family.
We live in a huge part of the world. I mean huge oceans, huge mountains, huge trees, huge birds, huge beaches, and huge distances. At highway speeds (except for the really twisty parts, and lunch), it took us three hours to drive in the rain about half the way, across one of the narrowest parts of Vancouver Island. It's apparently a faster trip right across Ireland. We passed between snow-blanketed mountains 1400 m high—taller than any in Britain, to make another cross-Atlantic island comparison.
It's common for us British Columbians to take day trips or short vacations over distances that would cross several countries in Europe, as my family did this week. I'm glad to be home, but as I noted on on Twitter, I miss the huge, deep, comfortable hotel bathtubs. And the heated tile floor in Tofino. And the sound of surf, gentle or roaring.
Labels: animals, canada, europe, family, friends, memories, oceans, travel
This other beach is pretty swell too. Yeah, we were supposed to be home by now, but we decided to take a side-trip before returning to the mainland.
Labels: animals, family, oceans, photography, travel
Our friend Kim is one of the designers competing on this season's Project Runway Canada, so we've been watching the show since it started a few weeks ago. It was filmed last summer in Ottawa. At the end of this Tuesday's episode, I was shocked to see an announcement that one of the designers, Danio Frangella (who left during the first episode because of health complications) died last week of cancer. He was 34.
He was not in good shape during that first episode, because he'd been undergoing cancer treatment for seven years, and had trouble walking because of his leg ulcers. Learning that he had died gave me a chill, because of course I have cancer too, and have had it for a couple of years now. Indeed, this week it is exactly two years since I began my medical leave from work. Two years!
If you haven't had cancer or known someone with it, you tend to assume that once someone gets it, they either get treated and go into remission (or are cured), or they die pretty swiftly. Those aren't the only alternatives. Many people live with the disease for years, sometimes decades, undergoing treatments and adjusting their lives around their symptoms and side effects. Danio was one of those, and so am I.
Even successful treatments may not be what you expect. Most statistical studies look at cancer treatments as successful if their subjects are still alive after five years—you often see "five-year survival rates" in such studies. I suppose that's fine if you're a researcher, or if you're a cancer patient in your 70s or 80s.
But if you're not yet 40, like me, or like Danio, five years isn't a very long time. I have a decent chance of surviving five years past my diagnosis, but that's not enormously encouraging, not when most people my age are thinking ahead a lot more than five years. I'm already almost half-way to the five-year mark. All the medications I've taken since 2007 haven't done what they really need to do, which is stop or reverse the nine small metastatic tumours still growing (slowly) in my lungs. On the other hand, I've also already lived longer than a lot of people diagnosed with my sort of aggressive colon cancer do.
One of the first things my gastroenterologist Dr. Enns told me back in '07 is that while there are tons of statistics out there on cancer survival rates, no one person is such a number, and the statistics can't predict how one person's disease will progress, or how long they will live. Just yesterday my oncologist Dr. Kim noted that research shows physicians to be notoriously poor at predicting life expectancy for cancer patients—no better than patients do ourselves, and in many cases no better than a wild guess.
As I wrote recently, I have "months certainly, years quite possibly" to live. How many years, I don't know. Nobody knows. Will I see my kids graduate from high school, or reach my 20th wedding anniversary with my wife in 2015? It's possible, but unless a new treatment starts working, or I go into remission because of lifestyle changes or another reason in that time, it may not be likely.
Then again, some people die young in car crashes or for other reasons, never anticipating their last day, or their last minute. If I'd been born 100 years ago, I would probably have died in my early 20s from diabetes, and might never have married or had children, or even seen a website, let alone built one like this. And if I lived in Swaziland (where 38% of adults have AIDS) or Afghanistan (with astronomical rates of infant mortality), even today, I'd be at the end of the average male life expectancy already.
Here, I am lucky to have a wonderful family, and support, and great health care, and I can still choose to live, to enjoy it, to write what you read, and to make my life as long and happy as I can.
Labels: cancer, chemotherapy, death, diabetes, family, television
Here's a measure of our world. My daughters chose some new plush toys for themselves today, bought with their own money. Both animals the toys represent (a penguin and a koala) are from the southern hemisphere.
They girls dressed them in a cowboy hat and Irish green clothes in honour of St. Patrick's Day next month (for Sparky the penguin), and stereotypical Canadian getup of plaid winter hat with earflaps, fleece vest, and red "Canada" shorts (for Ringo the koala):
So we have an Antarctic aquatic bird in Irish and American clothes with a semi-American name, and an Australian marsupial in Canadian gear with an English name. Oh, and if you squeeze Ringo's hand, he roars like a Tyrannosaurus.
Labels: animals, birthday, family, shopping
On Valentine's Day in Vancouver, on an afternoon in the midst of the 1998 Winter Olympics in Nagano, Japan, our first daughter, M, was born. Today she turned 11, and had a party at our house.
I remember being that age, in 1980, quite well. It was the fourth year in a row that my parents and I traveled to San Diego for summer vacation, and it would be two years before I quit studying classical guitar. It was the first year we had a computer in the house (a borrowed TRS-80 Model I).
My daughter came home from the hospital to a house full of computers. She has been taking music lessons for more than five years, longer than I ever did. She has never been to San Diego, but she has seen Hawaii and the Oregon Coast. She has a little sister, two years younger, while I was an only child. This year she started reading novels. She is smart, and articulate, and loves the Beatles.
Happy birthday, Miss M.
After linking to the excellent Playing The Beatles Backwards review a few days ago, I've been listening to their stuff again with a fresh ear, especially to some of the less famous tracks. And though I've been playing Beatles music in a cover band for over 20 years, they still blow me away.
Think about this: those four lads recorded Rubber Soul in less than a month, releasing it near the end of 1965. Then Revolver followed eight months later. Sgt. Pepper came ten months further on. So they recorded and released not only their three best albums, but three of the best rock albums of all time, encompassing at least a dozen of the greatest songs—all in a year and a half.
Oh, and they managed to put out a few singles you might have heard of during that time too: "We Can Work It Out," "Day Tripper," "Paperback Writer," "Rain," "Yellow Submarine," "Eleanor Rigby," "Penny Lane," and "Strawberry Fields Forever." Several of them didn't even appear on the albums. They were bonus songs.
Forty years on, it's easy to forget the almost thermonuclear burst of musical creativity The Beatles offered the world. Their recording career lasted from "Love Me Do" in mid-1962 until "I Me Mine" (from Let It Be) at the very beginning of 1970, a little over seven years. There's never been anything like it, before or since.
My older daughter watches MuchMusic and has me put on Top 40 radio in the car, but given the chance, she'd rather listen to The Beatles anytime, and their posters adorn her walls. The first few notes of "I Saw Her Standing There" can still bring a crowd to their feet dancing. "A Day in the Life" can make them weepy. "Hey Jude" will get them swaying. The Beatles, who did almost everything before I was born, still make me glad for the existence of music.
Labels: art, band, family, memories, music
I haven't written about my cancer treatment much here recently, but that's not because nothing is happening. It has been exactly two years since I first found out I needed major cancer surgery (though I didn't realize at the time how long this would go on). I've been through several such surgeries, radiation therapy, numerous bouts of chemo, and a whole range of side effects. In some ways, despite its severity, my cancer treatment has become part of the background of my life.
Since this past November, I've been taking a fairly hefty dose of cediranib, a relatively new experimental anti-cancer drug. I take a pill or two once a day, which is an improvement over the hours-long IV infusions I've had before. And of course I have side effects.
They're different this time. Rather than overwhelming fatigue and several days of nausea every couple of weeks, they are intestinal, and less predictable. To summarize and not be too graphic, my family has come to call the bouts of symptoms I get every couple of days "the Poopfest." When it happens, I'll often be in the bathroom for an hour or two at a time, or leave the washroom to come back to bed, then have to turn around and go right back. Sometimes I get what I call "Jurassic Gut," where my abdomen sounds like a Spielberg dinosaur growling, and those substantial gas bubbles can be painful.
For other patients, the drug can also cause tiredness, skin symptoms, and high blood pressure. I've been lucky not to get all of those. My blood pressure is naturally a bit low, for instance, so even when it has risen a bit, it's well within normal range. But this week has been particularly harsh.
I developed a chest cold—the rest of the family got it too—but it has hung on, and that's when the fatigue set in. The past few days I have slept, and slept, and hardly been out of the house. The Poopfest has turned into diarrhea that sometimes lasts most of the day. Last night we all went to a friend's party for a few hours, but when we got home my Jurassic Gut was simply astounding, and lasted for well over three hours. I couldn't get to bed till 2 a.m., and while I think I'm slowly getting better today, it is exhausting.
When I'm feeling well, which I do sometimes, I could almost imagine going back to work. But then things go a bit sideways like this, and I know I'm still pretty ill. In a couple of weeks, I'll find out after my next CT scan in mid-February whether the cediranib is helping to slow down the growth of my lung tumours. Hope so.
Labels: cancer, chemotherapy, family, fatigue, pain
When you have one child, it's easy to delude yourself about the magnitude of your influence on them. When our first daughter was young, for instance, I subconsciously assumed that she was the way she was largely because of the parenting my wife and I offered. As soon as her sister was born a couple of years later, we discovered how wrong we were.
Not that parenting (or family, or friends, or society more generally) is irrelevant, but parents of more than one child will tell you that their kids do seem to be born with certain personality traits, and they develop their own interests and approaches to the world as they grow. Children are little people, individuals, right from the beginning, not blank slates to be molded completely by how we raise them. Our daughters have a lot in common, but they're also quite different.
As I've noted before, my younger daughter L, who turned nine yesterday, makes up her own homework in her spare time. A couple of days ago, for example, she was copying equations out of a Math 11 textbook. She's a little too young to understand them—after all, they're eight years ahead of her current curriculum—but she's certainly getting good at writing square-root signs.
My wife Air, who's a math teacher (hence the textbooks in our house), suggested that L try the Grade 8 book instead, only five years ahead, where some of the problems might be closer to her level. So this morning we woke up to hear our daughters arguing vociferously about subtraction problems.
Among her other interests, our older daughter M has liked photography for some time, and we bought her a little Pentax point-and-shoot digicam for Christmas 2007. She likes it, but she also enjoys using my big Nikon DSLR because of the higher quality photos it takes. She often creates some really good compositions, and of course her perspective is quite different from mine. Here are some of my favourites she's taken:
They're certainly better than anything I took when I was ten. Or, as in the case of the top left photo, four (!).
Labels: family, photography, school
It's lunar new year (of the Ox)! It's Australia Day (well, not in Australia anymore, since there it's tomorrow by now)! It's the birthday of Ellen DeGeneres, and my cousin Tarya, and our friend Kelly!
And, best of all, it's my youngest daughter L's birthday too!
She's nine.
Several years ago, pioneering podcaster Adam Curry had an ad campaign going for Senseo, a Dutch coffee maker that uses individual single-cup pods. At the time, I thought it was kind of a silly idea, though he genuinely seemed to enjoy using it.
For Christmas 2008, my wife bought me a similar machine, a Tassimo by Bosch. I had been wasting quite a bit of coffee, because I'm usually the only one to drink it in the house, but I do have some almost every day. The Tassimo, with its plastic pods, at first seems a bit wasteful too, but rather than our making half a pot and throwing most of it away, this system lets us brew a single cup of coffee, tea, latte, hot chocolate, or whatever in less than a minute. If I want another, it's easy to make a second one.
The system is clever because the "T-Disc" pods each have a barcode that the machine reads in order to know how much water to brew, how hot it needs to be, and how long to brew it for each beverage. Of course, that means that you can only use Tassimo-branded discs (from makers including Nabob, Maxwell House, Gevalia, Starbucks, etc.) and can't refill them with your own coffee, which is very corporate and controlling of them—in principle.
In practice, I pretty much always brew pre-ground brand-name coffee anyway, so the only difference for me over the past few weeks is that the Tassimo is more convenient. I'm sure the roast-your-own-beans crowd would be horrified, but I have bigger things to worry about.
Labels: family, food, geekery, holiday
Knowing that I can raise my lip, Stallone-style, my older daughter asked me to make this silly 20-second video:
No strings were harmed during filming. The song is my own "P and P," from 2005.
Labels: family, flickr, humour, video
My daughter is 10, but she has already learned something about email that I didn't get until I was in my 20s. A screenshot of the message she sent me earlier:
Well said. We'll work on that layout and typography as she gets older.
P.S. Here's what her younger sister, age 8, just said to me now in tones usually reserved for chocolate vs. regular milk: "Dad, instead of Safari can I have Firefox?"
Labels: controversy, email, family, geekery, spam
Last night and today were an improvement over the previous couple of days, although I was up most of the night with side effects anyway.
And despite high winds overnight and this morning in Victoria, the weather calmed down in the afternoon and we had another pretty trip back across Georgia Strait from Vancouver Island to the mainland. We're home now, seeing if we can all stay up to ring in 2009. Looks like we might get there, although our younger daughter is watching TV alone in the living room, and I'm guessing she might crash before midnight.
Happy 2009, everyone. I'm glad to see another new year.
Labels: family, holiday, oceans, travel, vancouver, victoria
It's hard to say how our post-Christmas family vacation in British Columbia's capital, Victoria, is going. On the one hand, we had a gorgeous trip over on the ferry yesterday, and a fun time at the Royal B.C. Museum today. The girls have loved going swimming. Our hotel, the Harbour Towers, is a great place to stay as usual, and we ate delicious room service breakfast this morning.
On the other hand, last night we had uncharacteristically poor and spectacularly slow service at Milestones restaurant on the waterfront, which is usually one of our favourites. (In their favour, the manager gave us a $25 gift card to compensate.) My wife and I have both not been feeling too well, particularly today—me from intestinal side effects of my latest cancer drug. The weather today was miserable, extremely windy and sleeting.
Worst of all, this afternoon at the hotel pool, my eight-year-old daughter somehow gashed her chin open just before we were planning to dry off. She didn't even notice at first—her sister and I, surprised, asked her why she was dripping blood. So we have no idea how she did it, but after we returned to my wife in our room and got a bandage, we all piled in the car to a nearby medical clinic. The little one turned out to need stitches, which she was not happy about.
I hope things improve tomorrow, or at least that things don't get any worse once again in the evening. We really do like this city, usually.
Labels: family, food, pain, science, travel, victoria
Here's a list we're starting to need in our household, since the girls got new iPods this month, and my wife and I are each on our second or third:
Options include using it as a virtual flash card deck for speech notes, or to run a presentation, holding reference information, as a backup drive, and for booting Windows XP (!). Or, as TUAW suggests, you can give it to a friend or family member, keep it as a car unit, or, as I have done, load it up with background music for Christmas (or for intermissions for the band).
I may try to use the old iPod nano as a Mac boot disk, even though that's not supposed to work. It can't hurt to try.
Labels: apple, family, geekery, ipod
It snowed a bit in Vancouver yesterday, and it is (for this mild city) pretty cold tonight—about -6°C right now, plus something of a nasty wind chill.
So, for the occasion, I went looking for photos of snowflakes, and via Pharyngula and New Scientist, boy did I ever find them. Researcher Kenneth G. Libbrecht of the California Institute of Technology has even had his snowflake images appear on American postage stamps.
I've also posted some photos of Vancouver's Trinity Street Christmas Light Festival, which officially kicked off tonight. We had a (chilly) walk through that neighbourhood earlier this evening.
Labels: family, holiday, photography, science, snow
1.
Ever wonder how great photographers capture amazing images? How do they happen to be there at the decisive moment? Scott Bourne's post at This Week in Photography about his recent photo "Cranes in the Fire Mist" tells you. There is some luck, yes, but much of it is long preparation and experience. Decades' worth, in Scott's case.
2. Today is the last day of voting for the Vancouver-area Best of 604 web awards put together by Rebecca Bollwitt, a.k.a. Miss604. The awards reception is tomorrow night. While of course I suggest that you vote for your favourites in every category, if you need a hint or two, my wife's podcast Lip Gloss and Laptops is nominated in the video blog/podcast category, and her personal site Talking to Air appears in the heavily competitive personal blog list. (Yeah, I got nominated for some stuff too, but why split the vote?)
3. If you listened to Canadian rock music in the '90s, you know the Vancouver band Odds. Well, they're back! After a hiatus of 12 years, earlier in 2008 they released a new album, "Cheerleader," under the name The New Odds. Recently they managed to get the rights to their original name Odds back, so (follow me here) Odds became The New Odds, and are now back to Odds again. Bass player Doug Elliott is a friend of mine, and also plays occasionally with my retro act The Neurotics, and appears on a track on my podcast. If you're on Facebook, join up as a fan on their new Facebook page.
Labels: band, blog, family, photography, podcast, vancouver, web
My daughters, like most people, have different talents. My youngest, L, can turn cartwheels, hang from jungle gyms, and balance on those one-wheeled rolling sneakers known as Heelys like nobody's business. (Sometimes you're certain she'll crash catastrophically into someone or something, but she'll simply swerve nonchalantly out of the way.) I can't do any of those things, and neither does anyone else in our family.
A few weeks ago, she said "hey, watch this!" to her mom and me. Before we knew it, she was suspended in mid-air in our kitchen doorframe, legs braced against the sides. Zoop, up she'd gone, Spider-Man style.
Her sister, M, has an ear for music. Yes, she can carry a tune—they both take music lessons, but it was M who begged us for them five years ago. Here's her example. A few weeks ago we saw one of those "where are they now?" shows on TV, this one featuring Mike Reno of Loverboy, who lives here in Vancouver. Then, a few days ago, I was at a restaurant with my kids and our friend Paul and his family. M cocked her head and said to me, "Hey, is that that Mike Reno guy singing?" I listened, but could hardly make out any music on the sound system over all the noise of people jamming the restaurant.
Then, sure enough, in a quiet spot, there it was: "Workin' for the Weekend," barely audible but undoubtedly there. She'd heard a little part of it once, it stuck there in her brain, and she filtered it out of the background automatically. How many ten-year-olds can identify a snippet of Loverboy (?!) at 20 paces, and name the singer?
As a boastful dad proud of his daughters' good taste, I also have to tell you that on sick days home from school, L spontaneously gives herself math lessons out of books (her mom is a math teacher). And when M redecorated her room this summer, she insisted on covering the walls with Beatles posters (wonder where she got that?).
Labels: band, family, itunes, music, paulgaray
I've lived in the Vancouver area my whole life, but somehow I had never been on the Albion Ferry, which crosses the Fraser River east of the city. Today I rectified that. My kids have been on the ferry several times with my in-laws, so they showed me how to get there and how it works (they had the day off from school). It's a short trip, only a few minutes, but it has a fantastic view:
From the Maple Ridge side of the river, the boat takes you to the village of Fort Langley, where the province of British Columbia (then a British colony) was born 150 years ago this month. There the girls and I had lunch, and I bought them some stylish new hats.
The Albion Ferry route will soon be replaced by the Golden Ears Bridge, nearing completion slightly further downstream, ending the 51-year run of ferryboats there on the river. Some people want to save the Albion Ferry, but I don't think that's likely to happen. So my first trip might also be my last.
Labels: family, river, travel, vancouver
For as long as I can remember, my parents have had this photo hanging on their bedroom wall:
I made a copy last night because my younger daughter has a project at school where she's discussing Germany, and she wanted a copy of this picture to illustrate Berlin, where it was taken. It was 1965, on my parents' honeymoon. My mom and dad were 26 at the time, and that's the city's mascot, a bear, between them. Here they are today (without the bear):
My dad still wears collared shirts most of the time, though my mom isn't into the bonnets anymore.
They look young in that first photo. My wife and I were the same age, 26, when we got married 30 years later. We didn't feel so young then, but we were too.
Labels: anniversary, europe, family, photography, school
We lucked out again this year: the pouring rain stopped just before the kids headed out in their Halloween costumes. It's been a busy night. Oop! There's the door again...
Labels: family, holiday, vancouver, weather
It has no direct legal bearing on us here in Canada, but still, the existence of California's Proposition 8, which asks the state's voters to ban same-sex marriage in the state's constitution next week, depresses me. Here in northern commie land, gays and lesbians have had the explicit legal right to get married since 2005, and you know what?
Canadian society has not collapsed. Heterosexual marriages haven't spontaneously combusted into invalidity—at least, not the ones that wouldn't have anyway. Gay people haven't been out on huge "recruiting" drives at local evangelical churches. Things are pretty much the same as before. Alas, a few of those married gay couples have even gotten divorced, as you'd expect.
So I like the point that this video (via Bad Astronomy) makes, by replacing "same-sex marriage" in a Californian pro–Proposition 8 ad with "interracial marriage":
Gay marriage doesn't seem to have destroyed People magazine either. So if you're a California voter who reads my blog and on whom I might have any influence—a pretty small number of people, I'd guess—then next week, in addition to voting for Obama (what? is that surprise from me?), please vote No on Proposition 8. It's unnecessary, and doesn't deserve the ink.
If I seem meddlesome here, hey, if any of my American readers had given me advice on how to vote in the Canadian election earlier this month, I would at least have considered your opinion. But none of you did!
Labels: americas, family, politics, sex
I think some of you might have garnered the wrong impression from my previous entry. I'm not giving up on conventional cancer treatment, nor am I resigned to dying soon. Rather, I'm considering my choices more carefully, trying some new things, and making a stronger cost-benefit analysis of the options presented to me.
Until September, the conventional treatments I'd been taking—chemotherapy, radiation, surgery—still showed reasonable promise of putting my cancer into remission, or shrinking it, or even (before we knew it had metastasized into my lungs) curing it. So it was worth trying everything, side effects and life-on-hold be damned. The surgery worked its magic: if the cancer cells hadn't found their way to my lungs first, I might very well be cancer-free by now from the skilled work of Dr. Phang and his team at St. Paul's Hospital. The radiation I'd had before that might even have helped.
But the chemo...well, those various poisons I've taken in 2007 and 2008 may very well have kept any further cancer from appearing in my intestines, but the tumours in my lungs are tough little fuckers, and have resisted being beaten down. Now I have to look at the new treatments I might have coming up, and decide whether their relatively low likelihood of zapping those same malfunctioning blobs of tissue are worth what I might have to suffer in taking them.
I mean, it's fine and noble to help cancer research, but I've already done that a couple of times. I might still do it this time, but even if I do, I'm prepared to bail out early if the side effects are too harsh or if it doesn't seem to be helping. I'm also meeting with a doctor at Inspire Health next Friday to talk about other stuff: nutrition, exercise, relaxation, complementary treatments, and so on.
This is a new phase of how I understand my disease, and how my family and I live with it, one I feel good about because I'm putting a priority on the living part.
Labels: cancer, chemotherapy, death, family, inspirehealth, science, surgery
My wife Air is wiser than me—more self-aware, better at thinking long term. A big reason I'm not that way is because, until I developed cancer at the beginning of last year, I'd never had to face big, difficult decisions. I had a happy, stable childhood, did well in school, lucked into good jobs, and found her. (More accurately, she found me. See what I mean?)
Even after my cancer diagnosis, I've followed the path I've usually chosen in life. That is, I've coasted, and let gravity take me where it will. My treatment decisions have been easy ones. Follow doctors' orders. Get tests, have surgery, take chemotherapy and radiation, more tests, more surgery, more chemo, more chemicals, more treatments, coming up on two years' worth now.
The surgeries in my intestines were successful, but small nodules of cancer spread to my lungs anyway, and the chemical medicines for those haven't worked so well. The metastases continue to grow slowly, regardless of what my doctors have thrown at them.
My latest surgery a couple of weeks ago was my first that wasn't about attacking the cancer. It was simply to make my life better, to reconnect my intestines so that I'm no longer walking around with an ileostomy bag of poop glued to my belly. Now I have another new, healing scar, and I'm re-learning how to use the bathroom the way I used to.
That surgery prompted my wife to have a talk with me a couple of days ago. With her wisdom, and her insight, she's seen what I've been doing in my mind for the past couple of years. I've been treating my cancer as something to fight with everything the doctors and nurses can offer, no matter how sick they make me, hoping that one of those weapons will kill it so I can move on with my life. I've put my life on hold—and my family's life too, hers and our daughters'—to fight the disease, treating it as a phase to get through before I return to something normal.
Except that's not how it's going. The next treatment the B.C. Cancer Agency is offering me is a Phase I clinical trial of chemotherapy agents. That means it's a very early human test of the drugs involved, not even designed to find out whether the drugs work to fight cancer, but rather how patients like me respond to them—what levels they appear at in my bloodstream, how they interact, what side effects they produce. In other words, we've run out of the conventional therapies, and we're moving on to experimental ones that have a very small chance of working. They are, however, likely to produce side effects, even if they aren't effective in shrinking my cancer.
Air made me ask myself—after almost two years on hold, most of which I've spent hammered down by those side effects, or recovering from surgery—how I want to live my life with cancer. Because that's what it looks like I'll have to do. We don't know how long that will be: months certainly, years quite possibly. All indications are that, like my diabetes, I'll have cancer for the rest of my life. It will probably be what kills me, whenever that is.
Yet since I stopped my last chemo treatments in September, I've felt good, verging on healthy, better than I have in ages. Therefore, much of what I've suffered through, especially recently, has been from the treatments, not from the disease. I thought that suffering was a necessary part of the fight. So I thought. But now it's time to make some real decisions.
Do I want to be part of this new Phase I trial, to contribute semi-altruistically to cancer research, spending many days at the Cancer Agency getting tests, taking pills every day, maybe feeling sick all the time and getting more strange skin rashes, perhaps even developing other weird side effects like elevated blood pressure, maybe for no reason that might actually get me better?
Or do I want to look at something else, like Vancouver's Inspire Health Integrated Cancer Care, and the Callanish Retreats, to try different things and look at managing cancer instead of fighting it? Strange as it sounds, should I make cancer part of how I live my life, rather than something that stops me from living it?
When I heard about the trial yesterday, I assumed, almost unconsciously, that I'd proceed with it. But that's still coasting, just taking whatever the doctors serve up from a diminishing buffet. There are places I still want to go in my life, things I want to do, the husband and father I still want to be. Perhaps now is the time to go there, to do them, to be that, because I can't wait forever first.
I shouldn't waste my life trying win a fight that likely can't be won. I should take it off hold, and live it.
Labels: cancer, chemotherapy, death, family, ileostomy, inspirehealth, love, science, surgery, travel
It's been many years since I attended a university convocation ceremony, but I went to one today. My cousin Tarya graduated with a Bachelor's degree from Simon Fraser University, which I can see atop Burnaby Mountain from our front window.
I was glad to be able to make it, before my surgery tomorrow. (I've been on a liquid diet all day, so I had to miss out on the family lunch afterwards.) It's been almost 20 years since I graduated from UBC, and Tarya's the first in our family to get a university degree since then—and since I'm an only child, my cousins are as close to siblings as I have. She and her longtime boyfriend T.J. also just announced their engagement too, so it's an exciting month for her.
Exciting for many of us, in fact. My next excitement is that I'll be in hospital for most of the next week, so don't expect much in the way of updates here.
Labels: family, school, surgery
My two kids attend the same elementary school I did 30 years ago. Although there is a recent addition, constructed since my older daughter began there in 2003, plus some ongoing seismic upgrading, the building hasn't changed much at all. (It was a relatively new structure when I started there in 1974.)
It was always a good neighbourhood elementary school, but one thing that has improved dramatically is an aspect of the social environment. The first week of school has all the students in mixed classes with others of various grades: final class assignments don't come until the second week. Throughout the year, the school organizes events and regular volunteer jobs so that more senior students (grades four, five, six, and seven) mentor and support younger students (kindergarten through grade three).
The consequence is that students get to know each other across all eight class years in the school. Even in grade one, my daughter was able to wave and say hi in the hallway to grade seven students she knew. And now that she's in grade five, she has buddies in lower grades. Her sister, in grade three, knows kids both older and younger.
That's a big change from the '70s: when I started, grade seven students were scary and huge and intimidating unknowns. They remained that way pretty much until I was in a split grade six-seven class years later. And by then I had no idea who the little kids were.
I don't know if this is a common change in elementary schools in Greater Vancouver, or Canada, or more generally. Our school administration has put a lot of effort into helping students understand their peers of all ages and background. Of course there is still bullying, and fights break out, but no more (and perhaps less) than I remember. I think that overall it's more of a community than when I went there.
Labels: family, friends, memories, school, vancouver
Today, my wife and I slept in (me more than her), took our kids to IHOP for brunch, had the car washed at Oasis, bought a few things at the insanely busy new Costco in Burnaby, then had a steak barbecue in our backyard with a couple of our friends and their son. My wife Air and our friend KA recorded their podcast while the rest of us took their dog Dizzy for a walk, before the rain really set in.
It was rampantly consumerist, yes, but it was a fun Sunday, and fun last day of summer for 2008.
Labels: family, food, friends, shopping
There's no good reason to try to determine which has been the worst year of your life, but I do consider it from time to time. It could have been last year, when I found out I had cancer, went through painful simultaneous chemotherapy and radiation, had four different surgical procedures (one of which kept me in hospital for almost a month), lost 60 pounds, and ended off with yet more chemo and no end in sight for treatment, even though I was feeling better.
It could be that. But it could also have been 2004, when I nearly lost my wife Air to clinical depression. I alluded to what happened that year, but never wrote about it it any detail, to maintain her privacy.
Now, almost five years later, she has written a four-part series on surviving major depression, as guest blogger at Mental Health Notes. She covers her initial post-partum depression back in 2000, the catastrophic breakdown in 2004 that took her to our local hospital's mental health ward for two weeks, her subsequent intensive outpatient treatment program at the hospital and gradual return to work, and the silver linings she has learned about in the years since, and now that she's had to take care of me through all my health problems.
In that weighty year, the worst moment for me was one day, after bringing our daughters to visit Air in the hospital. We had played cards with her in the patient lounge, on the ward where nothing is sharp, and there is nothing mounted to the wall or ceiling that will hold a person's weight. I brought the kids back to the car and buckled them into their seats, then I slumped on the outside of the door, and I cried and cried, not even caring what the girls thought, or whether some stranger might see me there, weeping against the station wagon in the hospital parking lot. At that moment I didn't know if my wife would ever leave that ward, or if she did, what would happen. I feared our life together would change permanently.
And it did. But, in many ways, for the better. When you get married, there's a reason you pledge to stay together for better or for worse, and part of it is that the worse forges something in your marriage that the better never could.
I look at her writing this way: I don't have to be brave to admit I have cancer. It brings almost nothing but sympathy from everyone who hears. I wish it were so for depression and other mental illness, but it isn't. As someone who's never been clinically depressed, I regret terribly that I really didn't understand what Air was suffering at all until it had gotten very, very bad in late 2003 and early 2004. I didn't have a fucking clue. And most of the rest of us don't either. Many people who have no experience with it remain judgmental about mental illness, so for her to write about it candidly now, when she doesn't have to—well, that's brave.
Her treatments have worked extraordinarily well over the past four years, but as with my cancer, as long as she is alive her battle is never over. I hope I am a better help in her fight now than I was in my previous ignorance. As my love and the person who cares for me, she is certainly the best reason to try my hardest to stick around.
Labels: blog, cancer, depression, family, love, web
I haven't cried for awhile. Back when doctors first found my cancer, more than a year and half ago, I cried frequently. Later in the year, after I'd been through chemo and radiation and surgery and catastrophic weight loss and side effects, I would sometimes wake in the night and sob in my wife's arms, "I don't want to die."
I still don't, and I still have cancer. I'm still taking chemotherapy every two weeks, lying in bed for a couple of days and throwing up. But it has become a grinding routine, a long, protracted war against my body's own mutant cells, rather than a fierce battle.
I wish I cried more. I'm not holding it back. When it comes, crying is a great relief. I feel alive.
But I think I'm a bit numb to the threat of death now—I could still die soon, but it seems less likely, since my medical team and I seem to be fighting the disease decently, and I feel pretty well most of the time. My family and I talk about the future, and such talk no longer seems hollow.
I also laugh, especially with my kids, and my wife, and my band. I played another show with them this afternoon, and one thing I enjoy best about it is that pretty much every show, I laugh uncontrollably at least once about something.
It's true that I'm more sentimental now, and get misty-eyed at times when I might previously have been stoic or cynical. Sometimes it's just when I look at my daughters. Sometimes it's when I see pictures from Mars. Sometimes it's when I'm writing a blog post.
Labels: band, cancer, death, family, music
Included on my ten-year-old daughter's school supply list for this year:
1 USB flash memory key
The smallest and cheapest one we could find was part of a stack of them on a school supply table at Staples. 1 GB for $20, and smaller than an eraser. I think I hear the echoes of my young geeky self swooning in disbelief.
Labels: family, gadgets, geekery, memories, school
If you're into audio gear, you'd like my father's house, especially his basement. Juke boxes used to be the thing, and he installed many of them in the '60s and '70s throughout British Columbia. My parents' rec room includes juke boxes for both 331/3 rpm LPs and 45 rpm singles.
Even cooler, my dad can hook up his MP3 player to one of them, and also route sound to some ancient but still great-sounding twin speakers, each of which comprises double 15-inch woofers (!) and exponential horn tweeters. Those can be extremely loud. Somehow I doubt that many people's current 5.1 surround sound systems will still be going strong in 40 years like these are.
Labels: audio, family, insidehomerecording, retro
Photos like this one are the reason I've been using black-and-white film to take some of my pictures recently:
Labels: conferences, family, friends, gnomedex, meetup, photography
It always turns out expensive, the food is bad for you, it ain't much but vast swaths of asphalt and carnival booths and rides and lights and noise, and this year once the sun set it started to rain. Then it started to rain really, really hard. So hard the fireworks were cancelled.
Still, my wife and daughters and I had fun joining Jodi and her husband and stepdaughter for a day at the PNE. Corn dogs, mini-donuts, wiggle chips, scones, burritos, teriyaki chicken, and bottomless refillable Diet Coke all stayed down, despite rides rides rides. (Myself, I didn't ride: was designated bag, newly-won stuffed animal, and umbrella holder.)
Now my legs are sore from standing around all afternoon and evening. Clothes and bags are hung up to dry. I've posted a bunch of photos, and it's time for sleep.
Labels: family, food, holiday, pne, vancouver
Thirteen years ago today, I was nervous and didn't sleep well. I had a garment bag hanging in the closet, and a couple of my best friends were staying with me. But my girlfriend Air, whom I lived with, wasn't there.
That's because we were getting married later that morning. She had stayed overnight with her two close friends, her wedding attendants. In the morning I put on my tuxedo and made my way to the Hart House on Deer Lake, not far from our home.
I didn't see Air arrive in the rented vintage Bentley limo with her friends and family. I waited outside on the lakeside lawn of the old mansion-turned-restaurant, under the huge tree at the end of the red carpet, with our 75 guests. I finally saw her emerge from the building into the sun as we played Van Morrison's "Crazy Love" on a boom box.
We've been together ever since, through thick and thin. And thick and thin there has been. I don't know who I'd be without her. Nor would I want to know.
Labels: anniversary, family, love, memories
Before I continue with my Camera Works series, here are the latest pictures I took with my new/old film camera. I used both black and white and cross-processed slide film with crazy colours:
Labels: family, film, photography, travel, whistler
I spent my last four years of high school at St. George's, an exclusive British-style boys' school in Vancouver, and graduated in 1986. It was a good education, academically rigorous. Teachers there taught me to write, and offered me the opportunity to travel as far as Russia and Italy. But, especially after returning for a day with one of my daughters for my 20th reunion in 2006, something seemed amiss—aside from the obvious absence of girls. Jen's recent post about her 10th high school reunion got me thinking about my uneasiness again.
A recent article in The American Scholar called "The Disadvantages of an Elite Education" (via Jason Kottke) put a finger on it. The article focuses on America and its elite education system, the high-end elementary and high schools that feed into universities and later exclusive business and political organizations. Here's how author William Deresiewicz starts out:
It didn’t dawn on me that there might be a few holes in my education until I was about 35. I’d just bought a house, the pipes needed fixing, and the plumber was standing in my kitchen. There he was, a short, beefy guy with a goatee and a Red Sox cap and a thick Boston accent, and I suddenly learned that I didn’t have the slightest idea what to say to someone like him. So alien was his experience to me, so unguessable his values, so mysterious his very language, that I couldn’t succeed in engaging him in a few minutes of small talk before he got down to work.
That's what I sensed in part while I was at my Canadian elite school too, even though I wanted to be there. It was what really struck me 20 years later: how isolated, inward-looking, and self-congratulatory it is (and was) as an institution. While it certainly has outreach programs and encourages students to travel and be charitable and so on, it's easy to graduate feeling entitled to something, or everything.
And it can be something of a shock to go into a big public university, as I did, and find out just how many people are way, way smarter than you, in all sorts of ways. Then to discover, beyond that, those who are smarter and more creative and more interesting still, but who never went to university at all.
St. George's has always been a very good school—and it's happy to tell you so. But, as in Deresiewicz's Yale University:
Only a small minority [of students] have seen their education as part of a larger intellectual journey, have approached the work of the mind with a pilgrim soul. These few have tended to feel like freaks, not least because they get so little support from the university itself [which is] not conducive to searchers.
I'm no great intellectual vagabond, but seeing a bigger world beyond academics or business or law or medicine has been important to me. The most impressive, and the smartest, people I've met have been those who flourished outside the educational and business elites my high school was part of.
There's a tradition at private schools that encourages generations to attend, as part of a true Old Boys' network: students grow up, and then send their own kids, who later send theirs. But even if I had sons instead of daughters, I don't think I'd send them to my old high school. Which is a bit sad.
Labels: family, memories, school
First of all, before you read on here, please head over to Raul's and Rebecca's sites, as well as others who are doing 24 hours of continuous blog posts for Blogathon 2008 today. Raul, in particular, is raising money for cancer research, and so both my wife and I have contributed guest posts to his site. Here's mine. Read it and then maybe donate some money if you feel like it.
Anyway, we're coming to the end of our idyllic week here in Whistler (courtesy of my aunt and uncle who own the apartment), and I'm glad it's been generally restful, because the brand new rash on my face that has developed here (an expected and inevitable side effect of my new panitumumab anti-cancer drug) is harsh and brutal and it sucks.
The pimples and redness came on shockingly fast (as they are supposed to), mere days after I received my first dose of the drug last Thursday. They're worst on and around my nose and on my forehead, although they extend up under the hair on my head, down my neck, across my chest and shoulders, and onto my upper back. The rash looks pretty gross, and sometimes feels even worse. Bleah.
KA asked me how sensitive my skin is. The best description is that feels like a permanent sunburn, and my nose in particular feels like a big raspberry. Sometimes I'd like to take a belt sander to the entire front of my head, but no, I shouldn't squeeze or even scratch the pimples. The best I can do is the occasional gentle rub, and a wet washcloth from time to time. I do have hydrocortisone and antibiotic cream that I apply twice a day, and they help. The L'Occitane cream my wife Air got me also does some good, though it stings at first.
What's dismaying is that my face might actually look better smeared with white goop than it does without—the cream helps hide the rash itself. Until now, I don't think I've ever in my life been genuinely embarrassed by my appearance. I didn't have bad acne when I was a teenager, and while I've always been a nerd, I've thought of myself as a decent-looking one. Now I walk around Whistler and consider whether people are looking at my face and wondering what's wrong. When I buy something at a store, I have to remind myself to look people in the eye, because my instinct is to turn my eyes down and avoid a direct gaze.
But when I look in the mirror, I realize that while the rash does look gross (pimples, dry skin, little scabs, ew), it feels worse than it looks, especially from a distance, and I shouldn't be too self-conscious about it. And I'm sure glad my wife and kids are still willing to hang around with me.
Overall, it is extremely unpleasant, considerably worse than I expected. I'm amazed how quickly the rash came on after I started getting the medication—but the people at the Cancer Agency did warn me, and said that a serious rash is a sign than the panitumumab is doing its job. It's some nasty shit. Hopefully, it's even nastier to the cancer than to the rest of me.
Labels: blog, cancer, chemotherapy, ego, family, pain, whistler
Right now it is pretty much exactly room temperature and sunny by the pool in Whistler. We are not going to the music festival in Pemberton, so we're avoiding what Megan Cole is calling a "Gong Show."
It's a pretty sweet vacation, I tell you.
Labels: family, travel, whistler
Here's where we were today:
It's been a good time. Huge thanks to my relatives Christine and Norbert for offering us the place to stay in Whistler this week. This place is awesome, and the weather has been spectacular.
One annoyance: as our trip began, the main side effect of my new panitumumab cancer drug has kicked in with a vengeance, and that consists of an acne-like rash on my face, neck, and upper torso, particularly around my nose and forehead. It feels like a constant crinkly sunburn, and looks like I'm a particularly unlucky pubertic teenager with hundreds of tiny whitehead pimples. Yuck. I'll have to get used to it.
Labels: cancer, chemotherapy, family, holiday, travel, whistler
No Zune talk today. It's working, my daughter likes it, and we're all going to the beach.
Labels: family, oceans, park, sunshine, vancouver
Not surprisingly, I sleep better when my wife is home beside me. I'm glad everyone is back and snoozing away.
Labels: family, home, love, travel
On Tuesday, my wife Air and our two daughters were joined by our friends KA and her son to fly to Disneyland, where they have been (with, for the first couple of days, our Australian friend Leesa, bound for home in Melbourne) for almost a week now. They fly home late tonight, when I'll pick them up at the airport.
As you might expect, it's one of those vacations that requires a nice break afterwards: they've been going going going almost non-stop for five days, with a few opportunities to sleep, swim in the pool, and have breakfast at the Best Western. To avoid the monster crowds on U.S. Independence Day on July 4, they rented a car for the 25-mile drive to Laguna Beach for a day in the surf, followed by In-N-Out Burger (mmm, In-N-Out).
The week has certainly felt odd here. I had a significant to-do list, including some paperwork, but (as I should have expected) only got about half of it done. What's most remarkable is how quiet our house is, and how little I've had to do laundry or run the dishwasher.
It's a bit lonely, however, and while I have as much room as I want to sprawl out in bed and sleep in, I've found myself still lying on my side next my wife's empty pillow, and not for as long hours as I might have thought. (I have returned to my college-age nocturnal behaviour, though, often staying up till 2:00 a.m. or later.) I'll be glad to have everyone back soon, so we can start our family summer, which I hope is a good one.
Labels: airport, family, food, travel
I don't think I'll become one of those reluctant to reveal his age. Hell, I'm damn proud of each further year I get at this point. So today I turn 39, for the first and last and only time. It will be a hectic day, with much packing and running around.
Why? Because tomorrow, Canada Day, July 1, my wife and daughters leave for a week at Disneyland, and I'm taking them, with our friend KA and her son, to the airport at 4:00 a.m. (!) for their 6:30 flight. A few hours later, I'll be back at the airport to drop off our friend Leesa for her return to Australia.
Then, as I begin a few days of solo living bachelor style, I have a couple of Canada Day parties I may attend, and maybe even a show by the Adam Woodall Band in the evening. That is, if I'm not so exhausted from the early wake-up that I just sleep away the rest of our national day.
So I won't reflect too much on my birthday. You can, however, read what I wrote at the end of June in 2007, 2006, 2005, 2004, 2003, 2002, and 2001.
My my. I have been at this blogging thing for awhile now.
And here, for no reason other than that I like it, is a picture of my daughters coming home from the last day of school:
It's summer, baby!
Labels: airport, birthday, family, holiday, travel
We didn't get the whole clan together (my wife's parents couldn't make it today, for instance), but we did have a very nice Father's Day dinner at the Keg Steakhouse in Burnaby this evening:
From left to right, those are my daughters, my wife, me, my mom, and my dad. We had steak. And dessert. Very full. Yum. It was particularly satisfying since it was a lovely sunny day, and my wife and I spent the morning painting one set of front steps at our house. She also cleaned and stripped the paint from the other set.
Labels: family, food, home, vancouver
I've been absent-minded recently, in a different way than when I first got diagnosed with cancer last year. I regularly forget things, or misplace them, in a way I didn't before. Just in the past week, without noticing, I somehow left a tiny SD memory card with some important podcast audio on it sandwiched between a Nintendo Wii disc and the case for a different disc in our den. It took hours to find.
And in the past couple of days, I was searching endlessly throughout our house for my heavy-duty camera tripod, which I bought last spring. It's not small—about a metre long—and made of steel, not to mention being in a big green nylon bag. Not something you'd think would be easy to lose. But it turns out that, after taking it to the Vancouver Sun Run with my band in April, I packed it in the bottom of my drum bag, under a bunch of cymbal and drum stands. I didn't recall that at all, until I had a hunch this afternoon.
It's also not unusual for me to forget something right after planning to do it: taking out the trash, grabbing a book to return it to the library, finishing unloading the dishwasher. You could attribute that to normal aging, but I am only 38. My wife calls it "chemo brain," and noted to me that it (under the name post-chemotherapy cognitive impairment) is a well known condition among chemotherapy patients. Most of the research talks about long-term effects on memory, learning, and coordination after treatment, not problems during it, like mine.
Other memory conditions apparently benefit from mental exercise: solving problems and keeping your mind active. That's something many chemo patients might not do, especially if we feel shitty a lot of the time and (like me) are off work. But I think one thing that might help me keep ahead of chemo brain is the various activities I continue to pursue that require thinking. Things like music, podcasting, photography, even sorting laundry or emptying the dishwasher (when I remember to do that).
At least it's a good excuse to geek out. And a good reason to do chores too.
Labels: cancer, chemotherapy, family, home, memories
There is nothing so relaxing as watching my two daughters and my wife as they sleep.
I've noted before how remarkable my wife is, both as a person and as a spouse. She's also amazing when I'm sick and when I'm not.
This week she had to deal with my being nastily ill once again: she not only shuttled me to emergency wards three different times and sat up with me there till insane hours of the early morning, but also kept the kids fed and clothed and schooled and loved, came to visit me with supplies (including some amazing lip balm), ran the house, went to work, and made sure everyone important knew what was going on with me.
I'm home now, but it was a gross week. After my overnight trip to Burnaby General Emergency (which wasn't too helpful) and visit to my oncologist (slightly more so), we went home. But I couldn't stay there. My intestinal pain got worse than ever (which is pretty darn bad), and we zipped down in the car to the emergency ward at Vancouver General Hospital instead—it is near the Cancer Agency, and has many more resources for handling both colon cancer and intestinal blockages.
I was at VGH for four days, and just returned home a couple of hours ago. During that time there was vomiting, lots of morphine injections, several X-rays, plenty of intravenous fluids, and no food or drink for the first couple of days. By Thursday things were improving. But man, overall it was brutal.
Now that I'm back on the couch in the house, I've decided to declare email bankruptcy for the week, purge my Gmail inbox (current count, 899 unfiled messages), and start over from scratch in the next couple of days. So if you emailed me recently, I won't reply now, sorry.
But I will get my wife some sort of nice treat in thanks for everything this week, that's for sure.
Labels: cancer, family, hospital, love, morphine, pain
My daughters' piano and voice teacher Lorraine has dozens of students, and at the end of each school year she holds a formal recital, where nearly all of them perform a piece—or two or three—over the course of several hours at the Shadbolt Centre for the Arts in Deer Lake Park, near where my wife and I were married:
It's not the dreary stereotype of a piano recital at all. There are lots of jokes and laughs, kids give their teacher big hugs, and there is dessert and coffee at the end. At tonight's recital, my wife and I were there, as were both her parents and mine. I felt gladder than ever to attend—I missed last year's event because of pre-surgery radiation side effects. Despite lingering pain from my intestinal incident a couple of days ago, I was still able to make it down and enjoy the music.
Watching kids ranging across ages (from kindergarteners through university students, and even a grey-haired adult or two) play or sing the music they've learned almost brought me to tears a couple of times, such as when my older daughter sang the Beatles' "Let It Be" for the crowd, or her younger sister ended her nursery rhyme medley with a huge smile on her face.
When I quit music lessons when at age 12, my dad told me my skills were nevertheless good to have, because you can never be sure when you might need to play music on the street to eat. He was right: I ended up (by choice) making a full-time living as a musician more than a decade later—including occasionally busking downtown to pay the bills.
I don't know if my daughters will ever do that, but the joy of playing music is enough in itself. Plus free trophies and candy too.
I never thought I'd be so glad to hear fart noises.
Last week, I finished a round of chemotherapy (which started in October) and started a break of a few weeks during which I won't need to be at the Cancer Agency much, and won't be pumping my body full of poisons for a change. But cancer treatment has been fond of serving me curve balls: a post-surgical blockage, antibiotic-induced unconctrolled low blood sugar, a blood clot, and near zombie-like collapse from dehydration.
One week into my break, I landed myself in hospital again very early this morning. It wasn't a car accident or a bar fight or anything—rather, I went to bed at 11:30 last night with a bit of a tummy ache.
Which got worse, and worse, and worse, until I felt like there was a big gurgling gas bubble sitting sideways in my small intestine under my navel. The pain was enough that I didn't sleep at all, and by a little before 3:00 a.m. I had to wake my wife to call the Cancer Agency doctor line and ask what to do. They recommended heading down to Burnaby General Hospital Emergency, and forwarded my treatment history to BGH accordingly.
Here's the yucky part of the explanation, so be warned. I've mentioned before that I have a (hopefully temporary) ileostomy bag from my surgery last summer. That's like a colostomy bag, but connected to a different part of the intestine. In essence, last summer my surgeon snipped my intestines where the small one (the ileum) meets the large one (the colon), just to the right of my bellybutton, so that my colon could heal from the removal of my tumours.
The end of my ileum now pokes out a hole in my belly into the open air. (No, I won't show you any photos, but I will say that it is a reddish-pink little nub.) To catch the poop that would normally flow out the usual way through my colon, I regularly stick on a small, plastic, remora-like ileostomy bag, which I can empty every few hours, and which I change every few days. Most people who don't know it's there would never notice the bag under my shirt during the day, or might think I have some sort of geek gadget on my belt beneath the shirt hem.
The problem as we drove down to the Emergency ward at the ungodly hour of 3:30 a.m. (after waking up my parents and having them come over to keep an eye on the kids) was that my ileostomy bag was empty, which is not normal for me at that hour. I suspected, as I writhed around a bit in the passenger seat and cursed the slow-changing traffic light, that I had another obstruction in my intestine, which was preventing the food I ate yesterday from going anywhere.
As you'd expect, that doesn't feel too great. Fortunately, for once we found the BGH Emergency waiting room completely empty, and only had to wait about 15 minutes before I got a bed. The doctors and nurses gave me a couple of morphine injections, took blood tests and X-rayed my chest and abdomen, and let me lie down to rest.
I was able to get some sleep after the painkiller kicked in, and eventually the emergency physician let me know that there was nothing alarming on the scans (and no obvious large blockage), that my blood tests were within range for someone just off chemotherapy, and that nevertheless my small intestine seemed to be pushing food waste through more slowly than normal.
The treatment? Go home, stay on a soft and fluidy diet, and wait for the natural passage of whatever minor obstruction was causing my nasty gas pains. So we did that, arriving back just before the kids went to school, and I've slept most of the day as the pain and bloating have very, very slowly abated. I've been able to empty out the bag a couple of times, and just in the past half hour or so, my ileostomy has been making what I would normally consider annoying involuntary farting sounds.
Except now, for once, they're a relief. Thanks, intestines, for working once more. And thanks to my wife and family for shepherding me through this, again.
Labels: cancer, chemotherapy, family, fatigue, hospital, ileostomy, pain
Without my wife, it's unlikely I would dress well. The evidence is clear from what I looked like before we met. However, I've always liked shopping, and used to enjoy going to the mall with my mom as much as 30 years ago. I just wasn't fond of buying clothes.
That's no longer true, and for the past couple of days I've spent some of my free time refreshing my wardrobe for the summer, with new shirts, sandals, and trousers.
I also got the chance to do a couple of other things. One was to purge out some older stuff in my clothes cupboards. The other was to go downtown and check out the new Apple Store.
Yeah, it is pretty much the same as other Apple Stores I've been to, with much the same selection of products as other Apple resellers in town, just more slickly presented. However, if you're looking for a variety of FireWire external hard disks (rather than USB 2.0 versions), the Apple Store has more types than most.
Labels: apple, clothing, family, geekery, shopping
My older daughter is 10 years old, and like many kids, she's a picky eater. She's never liked most fruits and vegetables—not the flavour so much as the texture. She finds bananas actively repulsive, and won't go anywhere near a salad.
However, for some reason she's developed a taste for broccoli, of all things. Last night before bed, she was hungry after a long day at Playland with her friend. She asked for broccoli as a bedtime snack. With her special cheese sauce, which she made herself based on a recipe from her grandmother.
I had some too. It was yummy.
I was 11 years old when Raiders of the Lost Ark premiered in 1981. Loved it, including the famous melting face scene near the end. I don't think I had seen Alien yet, but I had a photo book of the movie and knew it nearly by heart, including the infamous chest-burster. In short, to me the gross stuff in those movies, and others, was cool, and didn't freak me out too much.
I also liked watching those '70s-era boogie-man shows like In Search Of, and I still recall waking up late at night during a sleepover in the basement at my friend Sean's house to watch a Ray Harryhausen stop-motion monster wreak havoc on TV. It scared me, and I liked it.
That doesn't seem to be the case for my daughters, aged 8 and 10. They asked me to tell them when to hide their eyes during scary parts of Raiders on DVD the other day, so neither of them actually saw the melting face, or a few other things. Based on that, we skipped Temple of Doom entirely. Tonight we watched Indiana Jones and the Last Crusade, which has even fewer freaky bits than Raiders, but the rapid aging and decomposition of the Donovan character when he drinks from the wrong Holy Grail was also more than they wanted to see. Our youngest hid her eyes, while our oldest didn't, but had trouble getting to sleep.
On the other hand, two and a half years ago our oldest was okay with King Kong, especially after a day or two to process it. But I still don't know whether we should take them to see the new Indiana Jones movie. I'm sure their friend Clive will love it as I did (he's 9, and watches action movies all the time), while after two Indy movies at home our daughters might not even want to go.
Fiction has always been a way for children to face scary things, and learn to live with them. That's what most fairy tales are about. So I don't want to shelter our girls too much. We're not going to force them to see Indiana Jones and the Kingdom of the Crystal Skull, but if after a bit of time they want to go, I'm not sure—should we take them or not?
Labels: archaeology, family, fear, film, memories, movie
I was driving back from the Vancouver suburb of Maple Ridge with the kids today, and my older daughter was playing Mario Kart DS in the back seat.
It was a strange cognitive experience, because we were barreling down the Mary Hill Bypass with Mario Kart music playing. My younger daughter said she was glad we weren't getting hit by red shells, and I was pleased to be able to resist bumping into other cars or going off wacky jumps.
Labels: driving, family, geekery, music, videogames
There are a lot of moms in my life—most importantly my wife, of course, who's the mother of our two daughters. There are also my own mom, my mother-in-law, my aunt, my cousin, many of our friends, and, most recently, my long-time pal and one-time roommate Tara, who had a daughter in February.
I think when your kids are young, they really don't fundamentally understand the concept of sleeping in at all. Pretty much any child past infancy treats sleep as an enemy. It's a measure of still being a kid, like aiming for puddles instead of avoiding them. Mother's Day is probably the prime example.
I remember bringing my mom breakfast way too early on Mother's Day Sundays when I was old enough to cook, in the late '70s. It never occurred to me that she might rather sleep than eat the delicious food that I spent so much time messing up (but not cleaning up) the kitchen over. No. Idea. At. All.
Today, my own kids were already awake at 8:30 when I carefully tiptoed out of the bedroom and closed the door, letting my wife sleep while I went to the bathroom and got ready to start the day. By the time I'd come back upstairs, our bedroom door was open and their mom, with a tired smile, had eaten some eggs prepared by our older daughter, who makes a pretty decent omelette. After some Mother's Day morning greetings from our younger girl, my wife was, blessedly, able to go back to sleep, and the girls went back to playing The Sims.
So, here's a toast to all of you moms who got woken up too early today for a kid-prepared breakfast. I hope it was tasty.
I've persuaded the kids to bring the Mother's Day gift to their grandmother, my mom, closer to lunchtime.
Labels: family, food, holiday, memories
Spring weather is coming, and with my new shaved head I'll have to remember to wear a hat and sunscreen—especially because chemotherapy side effects also mean I should avoid prolonged sun exposure.
More positively, my family has been looking at accommodations on B.C.'s Sunshine Coast for a weekend getaway, possibly sometime in June. We're the sort who avoid camping, and much prefer places with restaurants and perhaps a pool. There are a few such places up the coast from here, including Rockwater, Pender Harbour Resort (beware, flashy Flashness), the Sunshine Coast Resort, and the West Coast Wilderness Lodge (not really that much wilderness).
Does anyone have experience and recommendations for fun family places to stay between Gibsons and Egmont for a couple of nights?
Labels: cancer, chemotherapy, family, holiday, oceans, travel
It's difficult for me to understand what it's like for my family and friends as I go through cancer treatment. As I've written before, in some ways it's easier for me than for them, because at any time I know how I feel, and at least tell myself that I have a decent sense of how I'm doing. That's not always clear to those close to me, and I know they worry.
I think I have a better understanding of it this week, because my wife had elective surgery a few days ago. She was in hospital overnight (which the doctors had expected and planned for, but which we didn't know about in advance), and has been recovering here at home. Since I'm not on chemotherapy this week, I'm in reasonably good shape and have been able to keep the house running fairly well.
But I wish there was more I could do to alleviate her pain and other discomfort. I also have little sense, from hour to hour, how she's feeling. I feel a bit useless. And this is relatively short term—she's been taking care of me, and doing a great job of it, as I've been through surgeries, chemo, radiation, drastic weight loss, and much more for well over a year.
This is that "in sickness and in health" part they talk about when you get married. I'm glad we can be there for each other.
Labels: family, hospital, pain, surgery
Tomorrow, for the second time this year, I'll be giving a speech at a memorial service. This time it's for my mom's oldest friend Sonia, who died last November. She would have turned 70 in January.
I had no trouble at all putting together a eulogy for my friend Martin in January, but this time around it's a bit more difficult. My relationship with Sonia was different—she was my mother's friend, after all, so every time I saw her it was related to something they were doing together—but also lifelong. By the time I was born in 1969, they had been friends for well over 20 years.
Sonia's three best friends (my mom included) compiled some information and stories for me to work with, and I have some ideas on how to turn them into a speech, but I feel already like there will be too much left out. It's hard to distill 60 years of friendship into five or six minutes, maybe one minute for each decade. And the group at the memorial will be much smaller than Martin's, maybe 50 or 60 people instead of several hundred. I actually find it easier to speak in front of large groups than small.
Anyway, I'll find the key things to talk about, plus some extras I know myself, and I think it will go just fine. I hope I can do Sonia and her friends justice.
I feel a little guilty about one thing: I'm sort of glad to make speeches like this. That's because each memorial I attend means I've made it long enough not to have my own.
Labels: death, family, friends
This book about home chemistry experiments looks pretty darn cool. (Via PZ Myers.)
When it's raining like this outside...
...there's only one thing to do:
Oh yeah, baby!
Labels: family, nintendo, videogames, weather, wii
The city of Burnaby, B.C., where I grew up and live, is just to the east of Vancouver itself, and is well known for a significant amount of parks and other green space for such an urban environment. One part of that is Burnaby Lake, a fairly large and extremely shallow wetland in the centre of the municipality.
The lake sits in Burnaby's central valley, and forms part of a waterway that starts at Trout Lake in Vancouver, runs east along Still Creek through Burnaby into the lake, and out into the Brunette River, which flows east and then south through Coquitlam into the Fraser River, which empties westward into the ocean. In recent decades governments have dredged the lake several times, both to provide enough depth for competitive rowing and to avoid having excessive sediment from development and the city's storm sewer system turn the lake into a mudflat—which is why the water's edge is so sharp in the satellite photo.
My wife had the great idea of taking the kids on a ten-minute car ride down the hill from our house every few days to check out the waterfowl and other birds, and to see if any chicks have arrived yet this spring. So far they haven't. But there are tons of animals and plants there, from birds such as ducks, Canada geese, crows, and pigeons to carp, frogs, squirrels, and even a significant population of beavers, the world's largest rodent and Canada's mascot.
She's gone down there with them a bunch of times, but this weekend I was feeling well enough to tag along. And a couple of days ago the sunny weather and abundant animals brought out another example of local wildlife: the Canadian wildlife photographer, whose distinctive plumage and plaintive ktsch-ktsch-ktsch-ktch call (known affectionately as the "shutter-and-mirror-slap") were in fine form down at the Piper Spit pier. The next day we visited again (this time one of the girls' school friends joined us), but our bunch was alone because of the cold and rain, which actually turned to snow briefly.
The entrance to that part of the park also crosses some railway tracks, which our daughters enjoy putting pennies on to see if they'll be flattened by passing trains. We're accumulating quite a collection of thin copper ovals now.
Exactly 20 years ago, in April 1988, I was working a summer job as a park naturalist, headquartered at the nature house at this exact spot, between the railway and the boardwalk. That job was where my wife and I first met. We led canoe tours of the lake some evenings (no motor craft allowed), and this year we're thinking of getting a canoe and taking our kids out there too.
Labels: anniversary, environment, family, friends, love, memories, park, vancouver
I know celebrity magazines and tabloids have been around for ages (here's a scandal sheet from 1957), and I've certainly seen them in checkout lines at the grocery store since I was a kid. But lately they—and a lot of their fashion and lifestyle magazine and TV cohorts—are really pissing me off. I think there are a few reasons.
First of all, they've proliferated wildly over the past decade or so, both directly (more tabloid rags) and indirectly (celebrity gossip appearing in other publications that didn't used to carry it, as well as on countless indistinguishable celebrity hack TV shows). Yet based on what appears on the covers, you'd think there were only maybe two dozen interesting people (Angelina Jolie, Britney Spears, and Paris Hilton, plus people who associate with or resemble them) in the whole world. It's an echo chamber.
Second, I have two daughters approaching adolescence now, and I can see how the relentless repeated messages from these sources could warp their perceptions of what is normal. My wife and I continue to point out the distorted perspectives as part of teaching our kids media awareness, but it's a fair bit of work.
Third is my experience over the past year, specifically with health and weight. Between the beginning of 2007 when I was diagnosed with cancer, and the end of July, I lost over 50 pounds. It's taken more than eight months to gain it back, sometimes requiring me to eat more than I actually want to.
Beforehand, I thought that my stable long-term weight of about 200 pounds (91 kg) was a little higher than it should be, but nothing to be too concerned about. Now 200 pounds seems like a lovely, wonderful weight, a healthy place for me to be, even with all my new lumps and bumps and scars from my treatments and surgeries.
So looking at the shows and magazines that are obsessed with the tiniest weight fluctuations and skin changes in celebrities grinds my teeth. These are trivial, pointless concerns—and what annoys me most is that it's not only obviously what sells, but it also invades my brain when I don't even want it to. Why is there even room in my memory for whether one or the other stick-thin actress has a pregnancy "bump"?
The magazines occasionally find their way into our house. I have occasionally flipped through them, usually in the bathroom. When I do, it's a physically unpleasant experience, like my soul draining out of my body. Ugh, and now it's turning me into a stereotypical grumpy complaining blogger too. See how poisonous these things are?
Labels: cancer, celebrity, family, magazines, shopping, television
I didn't really get podcasting at all until the middle of 2005, which was some months after the technology first appeared in late 2004—and right about the time iTunes started supporting it. The first person to start a real podcast in our family was my wife, who launched Lip Gloss and Laptops with her friend KA in March 2006.
Their show has now reached its 100th episode. That would be a milestone in any medium, but in podcasting it's a big one. A good percentage of podcasts podfade and stop publishing long before their 100th show. Others, like my my personal podcast and the other one I co-host, publish irregularly and so take a long time to rack up the numbers (despite starting back in 2005, Inside Home Recording hasn't even reached episode 60 yet).
But other than a few holidays over Christmas and such, Lip Gloss and Laptops has come out every Wednesday for over two years. Even if you're not into the beauty and cosmetics industry, which it covers, it's an interesting and informative listen. (As the show's audio engineer, I hear every episode.)
So congratulations to Airdrie and Kerry Anne on their 100th show. I'm sure they'll be hearing lots more cheers from their fans around the world too.
Labels: anniversary, family, lipglossandlaptops, podcast
I'm posting this from my iPod Touch on a bench at the playground at my kids' school. They are riding bikes. Yay for free open Wi-Fi from one of the nearby apartments.
Labels: apple, family, geekery, ipod, school
As always, there are some people who think those darned kids today are taking us all to hell in a handbasket with their ignorance and filthy habits. However, I seem to recall titles like this only in my university statistics course textbook:
But that's not where it comes from. It's a school math worksheet for my younger daughter, who is eight and in grade two. I'm not sure "data management and probability" were words I could even say at that age. (Then again, I did know what "carbon monoxide" was from my first favourite book.)
As for my other daughter, who is ten, she drew a picture the other day. It's taped to her bedroom door:
I liked the Beatles at that age too, but she loves them. I had no idea who the individual Beatles were, never mind what instruments they played—especially that Paul played piano as well as bass.
Notice that while John and George are playing their guitars left-handed, which isn't correct, Ringo's drums are frighteningly accurate. And even though his kit didn't have one, hers has a soundhole in the front drum head as most do these days. I guess my work as a drummer has rubbed off a bit.
Kids today. Too damned smart.
Labels: age, band, family, neurotics, probability, school
Labels: apple, astronomy, evolution, family, google, linksofinterest, music, school, science, sex, space, travel, web
I'm not sure if she's noticed, but after more than 12 years of marriage, and despite chemotherapy's deleterious effects on my vim and vigor, I still quite regularly check my wife out. Wink wink.
Labels: chemotherapy, family, love, sex
Beware: graphic blog post ahead.
Chemotherapy isn't something your body gets used to—the side-effect symptoms generally just get worse and worse as you proceed with treatment. While I've had it better than some folks since my current round began in October, this week—and today in particular—has sucked.
I finished my usual chemo dosage on Friday, but my recovery, usually pretty quick, was slower then normal this week. I had my delayed CT scan Friday evening, then went out for dinner, but yesterday, Saturday, I felt hung over all day, with a dull headache and fatigue.
This morning was a disaster. One of the potential side effects of some of the chemo drugs is late-onset diarrhea, something I haven't had in the four months I've been on this treatment. But I got it last night. Because I've had a temporary ileostomy bag since the summer, I don't have the urge to go to the bathroom. The bag glued to the side of my belly simply fills up, and I have to notice and then head to the washroom to empty it. I did that around 1:30 a.m.
But if things go badly, as they did today, the bag leaks. I noticed around 7 a.m. when it filled up again. I was able to leap out of bed, charged with adrenaline, and avoid making a big mess. After cleaning things off I got into the shower and prepared to put on a new bag, but while washing my hair and shaving, I suddenly felt like I was going to pass out.
Normally for me that would be a sign of diabetic low blood glucose, but after spilling test strips across the kitchen counter, I checked my levels and they were normal. Something else was wrong, and I felt cold fear. I stumbled into the bedroom, still dripping from the shower, and woke my wife as I lay down to keep from falling over. Getting horizontal, I immediately felt a bit better.
After assessing the situation and talking to doctors at the Cancer Agency, she discovered that fluid loss probably made me dehydrated and light-headed. Electrolyte imbalances likely gave me the hangover-like symptoms too. I've been drinking fluids and taking Imodium, as well as sleeping, all day since. I feel mostly normal now, but the headache is still there. My wife is having a nap too, because she was out late last night and didn't get enough sleep before I zombie-crashed her awake first thing today.
I hate having to put her and the kids through crap like this. It scares me too. I hope tomorrow is better.
Labels: cancer, chemotherapy, diabetes, family, fatigue, ileostomy, love
Sometimes I forget how sick I am. Not often, but on a day like today when the sun is shining and I have a week off from chemotherapy, when I can take the car in for service, then buy some groceries and take the bus home, make dinner, clean up, help get the kids to bed, and record a podcast, there are times when I forget the cancer.
At times like this, I have to remember what I've learned in the past year, which is to say no.
When I was healthier, I'd often get roped into (or rope myself into) projects that might be fun, or might benefit me or other people, or might even make me some money—but that turned out to be way more work than I expected. Or I'd end up saying yes to many little things that, individually, wouldn't take much effort, but collectively sucked up way too much of my time.
I can't do that now, and it has been a good lesson. During the rollercoaster of surgeries and radiation and chemo and weight loss and weight regain and wild swings in blood glucose and mood and physical ability since the beginning of 2007, I've simply dropped quite a number of things, sometimes with no warning. The world kept spinning, and the people who had to pick up the pieces did a good job, or made do without my contributions.
Seeing that, I've made myself a rule. When I get offered some freelance work or come across a volunteer project or a hobby activity that I might want to do—the kind of thing I'd have reflexively said yes to previously—I ask myself a question: if I'm well enough to do this kind of work, shouldn't I be ready to go back to my day job? If not (and so far, my answer has always been no, I'm nowhere near healthy enough), then I shouldn't take on anything big and new either. I shouldn't, and can't, juggle what I used to.
It's refreshing. I do smaller things here and there, and have managed to keep doing some activities I really enjoy, such as podcasting, playing with my band on occasion, and writing this blog. I do some chores around the house, hack around with computers, watch a bit of Discovery Channel, hang out with my kids and make sure they get to school in the morning, and spend time with my wife so I can look into her amazing blue eyes.
For now, in between all my medical appointments and such, that's plenty. And that's what I say yes to.
Labels: cancer, chemotherapy, family, fatigue, love, navarik, podcast
The stereotype is that children seem to grow up instantly, but that's not my experience. Our older daughter turned ten today, Valentine's Day. She was born the same day that Catriona Le May Doan won a gold medal at the 1998 Nagano Winter Olympics. Coincidentally, a couple of our good friends had their first child, also a daughter, two days ago. It occurred to me that by the time this new little girl reaches ten, my daughter will be twenty—the age I graduated from university.
The past ten years haven't, as the saying usually goes, gone by in a flash. They feel like ten years, really. And that's great. When my wife and I each held our friends' newborn yesterday, in the same hospital where our daughters (and I) were born, the little one's tiny sleeping face and delicious infant smell took us back to those early days when we first dove head-first into the sleep deprivation of early parenthood.
Since then we've had another daughter, now eight, and the kids have grown, learned to walk and talk and read and write and ride bikes and play piano, gone to preschool, made friends, started kindergarten, and now are in the second and fourth grades. They're learning math and spelling and have their own blogs and Gmail accounts. It doesn't surprise me that it took a decade to get here.
This spring also marks the twentieth anniversary of the day my wife and I first met, when we both worked as park naturalists for the Greater Vancouver Regional District parks department (now called Metro Vancouver Regional Parks). We were friends for a few years after that at the University of B.C., then lost touch until spring 1994, when we met again and started dating. By our first Valentine's Day, in 1995, we were already sharing a house and planning our wedding, which took place that August:
She's been my wonderful Valentine ever since, and I've never wanted another. Twenty years doesn't seem an unreasonable time since then either. We've shared and endured a lot together.
Simply being able to say "I met my wife twenty years ago" does make me feel a bit old, but I like that too. Grey hairs might or might not be a sign of wisdom, but they are a sign that I'm still alive. So 2008 is an important anniversary year, especially following the last one. Happy birthday to my daughter. Happy Valentine's Day to my wife. Happy one more day for me.
Labels: age, anniversary, birthday, family, love
Cosmic bowling and a birthday party at the bowling alley are an energetic experience with a mob of kids all around age eight. There was even a conga line.
Our youngest has been especially excited to turn eight, as she did today, because now she's allowed to swim in local public pools (including going down the waterslide) by herself—we adults can simply sit at the side for a change. She's been planning today's bowling party for over a month.
The kids had a good time. Hot dogs, cake, chips, pop, presents, and flashy lights and music. Everything an eight-year-old needs.
And, of course, later we had to tackle the inevitable blister-pack packaging. Argh.
I'm not the only one in the family who got new glasses this week.
In fact, I think my older daughter's new set may be the funkiest spectacles anyone in our family has ever owned. They're clear and colourless, except for groovy brushed-metal strips on the sides and a "Vogue" brand logo. She loves 'em, and her sister, who doesn't yet need glasses, is a bit jealous.
And she apparently did very well in her Royal Conservatory of Music grade 1 voice exam today (where I took the photo). She didn't seem at all nervous, but still refuses to let the rest of us listen to her practice singing at home, so she does that in the basement.
Labels: family, glasses, music
A few days ago my wife mused that she'd like something by her bedside to listen to podcasts and music on, so she doesn't have to go to sleep wearing earphones. Gadgety guy that I am, today I went out and found her just such a thing, the Logitech mm50 iPod speaker system. While it has been superseded by Logitech's newer and very similar Pure-Fi Anywhere system, the mm50 is still widely available (for now) in the $100 to $150 range, brand new.
I've had my eye on the mm50 since Adam Curry advertised it on his Daily Source Code podcast a couple of years ago. For our needs it's the right mix of reasonable size (it's about the length of a loaf of bread, and as deep as a thick slice), portability, ease of use, and, most of all, sound quality. The unit I bought was a discounted open-box floor demo from Best Buy, and while there I compared it to a variety of other options. It sounded superior to most of them, and better than pretty much anything in the sub-$200 category, including its newer Pure-Fi sibling.
It's not perfect. While it charges any iPod plugged into its dock connector, and includes adapters for several iPod models, the mm50 doesn't act as a true iPod dock that you can connect to your computer to sync up. (Earlier releases of the mm50 did offer that feature, and it's still noted in the manual, but newer revisions like ours don't have the necessary pass-through dock socket.) Volume control is two buttons, rather than a more sensible knob. There's no bass or treble or other equalization control—although the sound is so good those don't seem necessary, and not having them keeps down the button clutter. The included remote, while useful, doesn't offer as much iPod control as some competing models. The internal battery isn't easily replaceable.
But the mm50 supports both AC power and its internal rechargeable battery, includes a nice zippered and padded carrying case, has smart stabilizing fold-out metal feet, features a regular 1/8" stereo line input for non-iPod devices, and feels remarkably sturdy. There's a two-year warranty. The "3D surround sound" isn't really 3D, but it sounds shockingly good regardless.
I think the mm50 is a good value, especially if you can find it at a reduced price now that it's a discontinued model. My wife sure likes hers.
Labels: apple, audio, family, gadgets, ipod, logitech, podcast, shopping
For kids who live in Vancouver, snow is a bigger treat than in much of the rest of Canada. While it does snow here every year, it tends to arrive when cold outflow winds from the B.C. Interior get overwhelmed by a warm wet front from the Pacific—so it may very well dump down and then melt almost immediately.
Several times over the past few weeks, therefore, I've planned to take the kids out sledding in the fresh snow, only to have the sky turn to rain and the ground become unpleasantly sloppy before we get the chance. But not today. It was just around freezing, but the snow was pounding down, so we packed up and went.
We were the first sledders today at our local park, which has slopes as steep as any ski hill. So my daughters were able to get a bunch of good runs in before they were wet and cold and we went home for hot chocolate and peanut butter sandwiches. Unfortunately, because of my current cancer treatment, blood thinners, ileostomy bag, and all that, I don't think sliding and bumping down the hill is a good idea for me, so I just watched and took photos.
Labels: cancer, family, ileostomy, park, sledding, snow, vancouver, weather
These are my first new glasses since 2004. Not too much different, but I like 'em (actually, I was looking at a much weirder blue pair, but both my wife and I agreed these were better). And the soul patch is gone now too:
Today's weather was as unpleasant as Vancouver winter gets: just above freezing, windy, with driving rain. Water sluiced down the gutters, and even brief jaunts outside, from the house to the car, or standing at the gas pump, felt bitter. Having something of a chemotherapy hangover from last week didn't help. I slept for four hours this afternoon in a grey funk.
The kids had trouble getting to sleep, in part because the house was creaking in the wind. I imagined what it must have been like to live in this climate in a Salish or Haida village 150 or 200 years ago—despite the richness of our landscape, surely even those First Nations people would have huddled inside their homes in weather like this too.
Then, tonight, around 11:30, I was getting ready for bed and looked out our front window. The wind had died down, the streets were dry, and the sky was clear; I could see stars and, in the klieg lights of the ski slopes, fresh snow on the North Shore mountains. It was quiet, and beautiful.
Labels: astronomy, chemotherapy, family, snow, vancouver, weather
I got my haircut yesterday in the midst of my cancer rollercoaster, so I was away from home all day. My daughters stayed at my parents the whole time, and when I got home, my oldest said, "Daddy, did you lose all your hair in one day?!"
I told her no, it wasn't from chemotherapy. I just got a haircut. But I have noticed that there is now a band of grey hair across the back of my head, from temple to temple, that wasn't there last time I got a short haircut a few months ago:
Labels: age, cancer, chemotherapy, ego, family
Some good things happened in my life in 2007. My kids took their first trip to Disneyland, and at the same time I made my first visit to the NAMM Show next door, which is like Disneyland for music geeks. I saw finally saw The Police in concert. My wife threw me a great birthday party. One of my best friends became pregnant with her first child, due in February 2008.
But otherwise it's been pretty rough. Back in January 2007, I first got my cancer diagnosis, and since then I've had four surgeries (one major), two rounds of chemotherapy (the second one is half-way over now), six weeks of daily radiation treatments, and almost a month in hospital, during which I dropped down more than 50 pounds below my normal weight.
To top it off, the year ended with the deaths of my mom's longtime friend, world figures Oscar Peterson and Benazir Bhutto, and my friend Martin, whom I'd known for more than 20 years. All role models, all flawed in their ways.
NOTE: I've now set up a memorial page for Martin, including links to articles about him, copies of the notes from his eulogy speakers, and photos from his memorial event on January 6, 2008.
And yet. And yet.
I have two very different yet wonderful daughters now approaching adolescence, and a wife who is by far my best friend and confidant. I have faced death and, so far, beaten it back. I have things I yet want to do, but also know that if I don't get to do them, I'm satisfied with what I've already accomplished in my life.
I'm glad to see 2007 gone, no doubt. I'm more optimistic now to see the end of 2008 than I was at some times during this past year. I'm surprisingly clear in how I see my place in the world. That's something of a gift.
Next Sunday there will be a memorial for Martin, who did not see the end of this year. I've been asked to speak briefly about his modeming and BBS days. One thing I know of him is that he was always trying to find new ways to have fun, and to be happy.
In my mind, we all have our lives and our families and friends, and we each must try to be happy, because they are all we have. Happy 2008 to you.
Labels: bbs, cancer, death, family, friends, geekery, holiday
This site runs on Blogger, as it has for more than seven years, but if I were starting over again today I'd probably use WordPress. That's what I recommend to my friends and relatives, so that other sites I work with, such as Simon's, my wife's podcast (as well as her personal blog), and Inside Home Recording all use it.
If you use the free WordPress.com hosting service, all maintenance and upgrades are handled for you by the fine folks who run it. But if, like me, you're reasonably geeky and need the extra customization available by running WordPress on your own server, the main hassle has been that, when a new version of WordPress comes out, upgrading the software involves:
I've gotten reasonably good at that, but it's still time consuming, especially for multiple sites. Today, while surfing around feeling gross from chemo side effects, I read about the Automatic Upgrade Plugin (via Scott Beale on Twitter). It does all of that stuff with only a few clicks.
I tried it on two websites without a hitch, even using the Automated Mode that avoids the multi-screen, "Here's the next step, CLICK HERE if you're sure you want to proceed" process—with hardly a hitch.
Then, confident, I proceeded to the third site, Inside Home Recording, again in Automated Mode, got almost all the way through, and encountered the dreaded "500 Internal Server Error" page. I tried rolling back to my previous installation of WordPress manually. No dice. I noticed even the IHR forums (which use different software) were dead, which was mysterious and a bit freaky. And when I tried putting a generic "Sorry I broke the site" HTML page at index.php or index.html at the root of the site, it still didn't work. Yikes! I'd blown up the whole website!
I had a hunch, and took a peek at the invisible .htaccess file. That's a plain old text file sitting on the IHR web server (which I think is in Texas). The ubiquitous Apache web server software it's running uses .htaccess as a list to answer the question, "What do I do with stuff on this machine when I sent it out to the Web?" It seems that either WordPress or the Automatic Upgrade plugin had added some extraneous stuff to the end of that file. I deleted the extra text and, bingo, IHR was back up.
Having rolled back to the older version of WordPress, I made sure I had proper backups again (I remind you, back up, back up, back up your stuff), then tried the Automatic Upgrade plugin once more, but this time in Manual Mode (i.e. confirmed each step). No problems on this second attempt, and IHR is spiffed up with the latest software release.
Elapsed time from upgrade to blow up to fix up? Less than ten minutes. Sometimes I'm glad I have some web-fu when I need it.
Labels: backup, blog, family, friends, geekery, insidehomerecording, lipglossandlaptops, podcast, software, web
NOTE: I've now set up a memorial page for Martin, including links to articles about him, copies of the notes from his eulogy speakers, and photos from his memorial event on January 6, 2008.
I mentioned that yesterday, in the shock of hearing about the death of my friend Martin, I hadn't yet cried. That changed today, and what prompted my tears was something small that I'd seen earlier this week and forgotten about.
As I've done since 2003, just before Christmas on December 23, I had sent out a holiday e-card (a photo of my family) to several dozen of our friends, colleagues, and acquaintances. Martin was on the list. He had replied with a brief, somewhat mistyped Merry Christmas message and a mention of his upcoming planned New Year's party, sent from his BlackBerry.
The next day, long before I heard the news, I had read his reply among others from our friends, filed it away, and forgotten about it. Today, as the snow fell outside and I was deleting some of the bounced emails from defunct addresses on my e-card list, by chance I came across his message again. He'd sent it at 11:44 p.m. on the 23rd, and sometime between then and the time I first read and filed it on the 24th, he had died. It must have been one of the last messages he had sent. I went cold. It was like an email from a ghost.
That was too much, and I went into the bathroom and wept. I blew my nose. The tissue was bloody from the side effects of the chemotherapy that is keeping me alive. Not much later, I cried again on my wife's shoulder when I told her the story.
Tonight my daughters and wife and I had dinner with Simon, the friend who told me the bad news, on the lower slopes of the North Shore mountain where he and Martin and others had once shared a house—and where Martin had hosted my bachelor party in 1995, at the end of a night exploring empty storm drains under the City of West Vancouver. At dinner, Simon and my family and I drank a toast to our lost friend. We're still stunned, and we weren't sure what to say.
Since my post yesterday I've heard from several people to whom Martin was important. I realized that for many of us, he was a pivot in our lives, someone who, though he never reached age 40, affected the kinds of people his friends have become, and for the better. Perhaps that is what each of us should strive to do.
Labels: chemotherapy, death, family, friends
From my youngest daughter, Santa Claus, and the rest of us here in my Great White North family, Merry Christmas.
Have a happy hoho!
Labels: family, friends, holiday, vancouver
Mark pointed out that my post yesterday was slightly wrong; the Winter Solstice was actually last night (not the night before), or this morning if you're on Eastern Time. For a demonstration of the contrast in weather, here's what it looks like right now in Vancouver:
Unfortunately, it looks like it will all melt before Christmas. Maybe before sundown today.
Labels: family, holiday, science, snow, weather
Here's a photo of the sun finally lighting up the wall of my daughters' school this morning. It was 8:53 a.m.—there's the Winter Solstice for you:
Labels: family, holiday, school, science, weather